Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

Díaz-González de Ferris, Maria E.; Villar-Vilchis, Marta Del; Guerrero, Ricardo; Barajas-Valencia, Victor M.; Vander-Schaaf, Emily B.; Alexandre de Pomposo; Medeiros, Mara; Rak, Eniko; Cantú Quintanilla, Guillermo Rafael; Raina, Rupesh; Alvarez-Elias, Ana C.; Ferris, María

doi:10.1053/j.ackd.2017.09.010

Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

Journal

Advances in Chronic Kidney Disease

ISSN

1548-5595

Date Issued

2017

Author(s)

Díaz-González de Ferris, Maria E.

Villar-Vilchis, Marta Del

Guerrero, Ricardo

Barajas-Valencia, Victor M.

Vander-Schaaf, Emily B.

Alexandre de Pomposo

Medeiros, Mara

Rak, Eniko

Raina, Rupesh

Alvarez-Elias, Ana C.

Ferris, María

Type

Resource Types::text::journal::journal article

DOI

10.1053/j.ackd.2017.09.010

URL

https://scripta.up.edu.mx/handle/20.500.12552/2260

Abstract

Health care transition (HCT) is a process that requires preparation as a continuum from pediatric- to adult-focused services. For adolescents and young adults with chronic or ESRD, this process can be prolonged due to their physical, psychological, family, or ecological factors. HCT preparation is a matter of patient safety and patient rights as the consequences of poor preparation at the time of transfer to adult-focused services are great, including rejection of organs, disease relapse, or even death. We present a case to illustrate important points of HCT preparation, with suggestions for intervention by the interdisciplinary team members who serve (and will serve) these survivors of pediatric-onset health conditions. To monitor the HCT process, yearly measurements of skill mastery need to take place guide interventions.