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Validation of the UNC TRxANSITION Scale™Version 3 Among Mexican Adolescents With Chronic Kidney Disease

2015 , Cantú Quintanilla, Guillermo Rafael , Ferris, María , Otero, Araceli , Gutiérrez-Almaraz, Anabel , Valverde-Rosas, Saúl , Velázquez-Jones, Luis , Luque Coqui, Mercedes , Cohen, Sarah , Medeiros, Mara

Background: There is a lack of valid health care transition readiness (HCT) scales in Spanish. Objective: To provide initial validation of the UNC TRxANSITION Scale™ among Mexican adolescents and young adults (youth) with chronic kidney disease (CKD). Methods: We used the professionally translated/back translated, provider-administered UNC TRxANSITION Scale™ (Ferris et al., 2012). This 33-question scale measures HCT in ten sub-scales including knowledge about diagnosis or treatment, diet, reproductive health, school/work, insurance, ability to self-manage and looking for new health providers. Its maximum score is 10. We enrolled 163 Mexican adolescents (48.5% females) with CKD stage≥3, mean age of 15.1years (±2.1) and whose primary language is Spanish. There were 15 patients on hemodialysis (9.2%) and 30 transplant recipients (18.4%). Results were compared to those reported in adolescents with chronic conditions from the USA.

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Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

2017 , Díaz-González de Ferris, Maria E. , Villar-Vilchis, Marta Del , Guerrero, Ricardo , Barajas-Valencia, Victor M. , Vander-Schaaf, Emily B. , Alexandre de Pomposo , Medeiros, Mara , Rak, Eniko , Cantú Quintanilla, Guillermo Rafael , Raina, Rupesh , Alvarez-Elias, Ana C. , Ferris, María

Health care transition (HCT) is a process that requires preparation as a continuum from pediatric- to adult-focused services. For adolescents and young adults with chronic or ESRD, this process can be prolonged due to their physical, psychological, family, or ecological factors. HCT preparation is a matter of patient safety and patient rights as the consequences of poor preparation at the time of transfer to adult-focused services are great, including rejection of organs, disease relapse, or even death. We present a case to illustrate important points of HCT preparation, with suggestions for intervention by the interdisciplinary team members who serve (and will serve) these survivors of pediatric-onset health conditions. To monitor the HCT process, yearly measurements of skill mastery need to take place guide interventions.