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    Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations
    (2017)
    Díaz-González de Ferris, Maria E.
    ;
    Villar-Vilchis, Marta Del
    ;
    Guerrero, Ricardo
    ;
    Barajas-Valencia, Victor M.
    ;
    Vander-Schaaf, Emily B.
    Health care transition (HCT) is a process that requires preparation as a continuum from pediatric- to adult-focused services. For adolescents and young adults with chronic or ESRD, this process can be prolonged due to their physical, psychological, family, or ecological factors. HCT preparation is a matter of patient safety and patient rights as the consequences of poor preparation at the time of transfer to adult-focused services are great, including rejection of organs, disease relapse, or even death. We present a case to illustrate important points of HCT preparation, with suggestions for intervention by the interdisciplinary team members who serve (and will serve) these survivors of pediatric-onset health conditions. To monitor the HCT process, yearly measurements of skill mastery need to take place guide interventions.
      2  10Scopus© Citations 18
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    A.L.L. Y.O.U. N.E.E.D. I.S. L.O.V.E. Manual on health self-management and patient-reported outcomes among low-income young adult Mexicans on chronic dialysis: Feasibility study
    (2022)
    Brito-Suárez, Juliette Marie
    ;
    Medina-Hernández, Elba
    ;
    Medeiros, Mara
    ;
    ;
    Morales-Buenrostro, Luis Eduardo
    We evaluated disease knowledge/self-management skills among low-income Mexican young adults maintained on dialysis and to test the effectiveness of the A.L.L. Y.O.U. N.E.E.D. I.S. L.O.V.E (AYNIL) Manual – Spanish Version on patient-reported outcomes. This is a low literacy teaching tool designed with patients and educators' input.
      1  11Scopus© Citations 6
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    Revisión de modelos para el análisis de dilemas éticos
    (2015)
    Ruíz-Cano, Jennifer
    ;
    ;
    Ávila-Montiel, Diana
    ;
    Gamboa-Marrufo, José Domingo
    ;
    Juárez-Villegas, Luis E.
    En la práctica médica pediátrica es frecuente encontrar a pacientes en circunstancias que representan un dilema ético para los profesionales de la salud. Un dilema corresponde a una situación en la que los preceptos morales o las obligaciones de similar obligatoriedad ética se encuentran en conflicto, de forma que cualquier solución posible al dilema es moralmente intolerable. Una revisión de la literatura permitió identificar diferentes modelos que abordan esta clase de dilemas. Se localizaron artículos utilizando las bases de datos Ebsco Host, ProQuest, Ovid e InMex, así como metabuscadores como metacrawler. Algunos de los modelos analizados fueron los siguientes: el Modelo de Anne Davis, el Método de Nijmegen, el Método de Diego Gracia, el Método Integral, el Modelo del Centro de Ética Médica de Bochum, el Modelo de Brody y Payton, el Modelo de Curtin y Flaherty, el Modelo de Thompson y Thompson, la Fórmula SAD, el Modelo de Javier Morata, el Modelo de Elaine Congress, el Modelo IFSW, el Modelo de Loewenberg y Dolgoff, el Modelo de la Ley Social, el Método DOER, el Modelo de Brommer, el Modelo de Corey y Callanan, el Modelo de Pope y Vasquez, el Modelo de Bush, Connell y Denney, el Modelo de Ferrell, Gresham y Fraedrich y el Modelo de Hunt y Vitell. Los criterios compartidos entre los diferentes modelos fueron los siguientes: a) la especificación del dilema ético; b) la descripción de los hechos a considerar; c) la definición de valores, principios y la postura ética que será tomada en consideración; y d) la toma de decisiones con la identificación de alternativas de solución. De acuerdo con la literatura revisada, se explican algunos modelos con el fin de identificar y ejemplificar elementos críticos que pudieran ser utilizados de manera práctica por los Comités de Ética Clínica u Hospitalaria en las instituciones de salud pediátrica en México.
      1Scopus© Citations 7  14
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    Validation of the UNC TRxANSITION Scale™Version 3 Among Mexican Adolescents With Chronic Kidney Disease
    (2015) ;
    Ferris, María
    ;
    Otero, Araceli
    ;
    Gutiérrez-Almaraz, Anabel
    ;
    Valverde-Rosas, Saúl
    Background: There is a lack of valid health care transition readiness (HCT) scales in Spanish. Objective: To provide initial validation of the UNC TRxANSITION Scale™ among Mexican adolescents and young adults (youth) with chronic kidney disease (CKD). Methods: We used the professionally translated/back translated, provider-administered UNC TRxANSITION Scale™ (Ferris et al., 2012). This 33-question scale measures HCT in ten sub-scales including knowledge about diagnosis or treatment, diet, reproductive health, school/work, insurance, ability to self-manage and looking for new health providers. Its maximum score is 10. We enrolled 163 Mexican adolescents (48.5% females) with CKD stage≥3, mean age of 15.1years (±2.1) and whose primary language is Spanish. There were 15 patients on hemodialysis (9.2%) and 30 transplant recipients (18.4%). Results were compared to those reported in adolescents with chronic conditions from the USA.
      1  12Scopus© Citations 33
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    Ley de la voluntad anticipada en México
    En la ciudad de México se dispone de una Ley de Voluntad Anticipada (LVA) desde 2008. Dicha ley tiene por objeto respetar la dignidad de la vida que declina y evitar tanto la obstinación como el abandono terapéutico de los pacientes en enfermedad terminal. Por otra parte, el artículo 8.o de la ley permite expresar el deseo de donar órganos para trasplante. Sin embargo, esta ley, que podría tener efectos benéficos para la procuración de órganos, es muy poco conocida según estudios que hemos realizado. Se llevó a cabo una investigación cualitativa con una entrevista semiestructurada, que había sido previamente validada, para documentar el conocimiento de los habitantes de la ciudad de México sobre la LVA.
    Scopus© Citations 1  1  10
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    Decreased Autonomy In Community-Dwelling Older Adults
    (2019)
    Sánchez-García, Sergio
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    García-Peña, Carmen
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    Ramírez-García, Eliseo
    ;
    Moreno-Tamayo, Karla
    ;
    Purpose: The present study aims to explore characteristics associated with low perception of autonomy among community-dwelling older adults. Patients and methods: This original research was derived from a cross-sectional study based on the study COSFOMA with information from 1,252 (60 years and older) community-dwelling older adults whose data was obtained through a questionnaire that included sociodemographic characteristics, as well as different scales of geriatric assessment. The perception of autonomy was evaluated with the autonomy sub-scale of the Quality of Life Scale of Older Adults from the World Health Organization (World Health Organization Quality of Life of Older Adults, WHOQOL-OLD).
      1  8Scopus© Citations 48
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    The effects of resistance exercise and oral nutritional supplementation during hemodialysis on indicators of nutritional status and quality of life
    (2016)
    Martin-Alemañy, Geovana
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    Valdez-Ortiz, Rafael
    ;
    Olvera-Soto, Guadalupe
    ;
    Gómez-Guerrero, Irma
    ;
    Aguire-Esquivel, Guillermo
    Background: Protein-energy wasting (PEW) is common in patients undergoing hemodialysis (HD). Studies have assessed the positive effect of oral nutritional supplementation (ONS) or resistance exercise (RE) on nutritional status (NS) markers in patients undergoing HD. Methods: The aim of this study was to assess the effect of ONS and RE on NS and the quality of life (QOL) of 36 patients undergoing HD. In a randomized clinical trial, patients were divided into the following two groups: a control group (ONS) that received a can of ONS during their HD sessions and an intervention group (ONS + RE) that received a can of ONS and underwent a 40-min session of RE during their HD sessions. Both interventions lasted 12 weeks. The patients' anthropometric, biochemical, dietetic and bioelectrical impedance measurements as well as their QOL, evaluated using the Kidney Disease Quality of Life Short Form, were recorded.
    Scopus© Citations 63  1  20
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    Análisis de las características sociodemográficas de los pacientes con enfermedad renal crónica terminal: Diferencias en un periodo de seis años
    (2012-07) ;
    Rodríguez, Graciela
    ;
    Luque Coqui, Mercedes
    ;
    Romero, Benjamín
    ;
    Valverde, Saúl
    Background. Chronic renal disease (CRD) is a disease with a strong impact on the childhood Mexican population with short-range limiting and serious consequences. Poverty and a social environment devoid of social justice hinder timely medical attention and long-range rehabilitation. The aim of this study was to determine the differences regarding sociodemographic features in patients under treatment at Hospital Infantil de México Federico Gómez, with a 6-year difference: patients diagnosed in 2003 as compared to those diagnosed in 2009. Methods. A retrospective comparative study was carried out with end-stage chronic renal disease (ESRD) patients with information obtained from the clinical files. Data were obtained on age, gender, renal insufficiency etiology, socioeconomic level, type of financing, place of origin, and whether patient entered a rehabilitation program (dialysis or transplant).
      1  31
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    Calidad de la atención médica desde un punto de vista bioético en un hospital oftalmológico de Ciudad de México
    (2019)
    Romero-Chávez, Edith
    ;
    Contreras, Daniela
    ;
    Objetivo: Analizar la percepción de la calidad de la atención médica desde un punto de vista bioético. Material y métodos: Estudio trasversal, analítico, descriptivo y cuantitativo. Utilizamos dos cuestionarios para evaluar la percepción la atención médica en cuanto a los principios bioéticos. Hicimos un análisis descriptivo y bivariado con cada una de las variables, y sacamos un puntaje de las preguntas que se relacionaban con los principios bioéticos. Resultados: Incluimos 252 participantes y encontramos que, durante la atención médica, se cumplieron los siguientes principios: 14% autonomía, 72% beneficencia, 51% dignidad, 30% integridad, 42% justicia, 52% no maleficencia y 27% vulnerabilidad. 3% obtuvo todos los principios bioéticos. Conclusiones: Uno de los grandes retos de la medicina es la implementación de modelos de calidad de la atención médica, que garanticen que los pacientes reciban una atención médica que tome en cuenta los principios bioéticos.
      1  2
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    Perceptions of COVID-19 patients in the use of bioethical principles and the physician-patient relationship: a qualitative approach
    (BioMed Central Ltd, 2024) ;
    Gómez-Guerrero, Irma Eloisa
    ;
    Aguiñaga-Chiñas, Nuria
    ;
    López Cervantes, Mariana
    ;
    Jaramillo Flores, Ignacio David
    The COVID-19 pandemic has influenced the approach to the health-disease system, raising the question about the principles of bioethics present in physician–patient relations. The principles while widely accepted may not be sufficient for a comprehensive ethical analysis. Therefore, the aim of this study was to explore the perception of these principles and the physician–patient relationship during a hospital stay through a qualitative approach. Method: Sixteen semi-structured interviews took place to know the patients’ perception during their 2020 hospitalization for COVID-19. The data was analyzed through the constant comparison method, creating categories and comparing them. In the end, seven categories were established and were grouped in three: bioethical principles (dignity, charity, vulnerability, autonomy), doctor-patient relationship (participant commitment, informed consent, health staff-patient relationship) and the experience of the disease (illness, the role of the family). Results: The research found that most patients described a positive experience, with the feeling of having been well cared for with no sense of discrimination or injustice done. The majority also reported that their autonomy was respected in the treatment decisions. The evaluation of these attitudes is an area of opportunity, especially when the patients' vulnerability is at risk. Conclusions: The ethics of virtue offers a better reflection of how human beings manifest themselves by emphasizing the development of virtuous character and behaviors that allow them to realize their values in life. Authorized by the Research Ethics Committee with registration: DI/18/105-B/3/308. © The Author(s) 2024.
      1  17